Video resources from the Cicely Saunders Institute
18th April 2018
Video resources from the Patient and Public Involvement Group at the CS Institute
The patient and public involvement group at the CS Institute has been working with C-change researchers to develop training resources. The resources explain the carer’s experience and describe how important it is to develop research in partnership with patients and families.
The Cicely Saunders Institute has uploaded a series of videos about the carers’ experience to the Institute’s YouTube channel. The videos cover a range of issues relevant to carers including co-ordination of care, communication and support in bereavement.
What is C-Change?
C-Change is a 5-year programme of research. It aims to deliver quality and cost-effective care across the range of complexity for those with advanced conditions in the last year of life.
The project is validating a patient-centred, nationally applicable casemix classification for adult palliative care provision. This classification will reflect the complex needs and concerns of patients and families, in order to deliver better quality, efficient care in the last year of life.
The project will ensure that patients across a range of advanced conditions and settings receive the appropriate resources according to their individual needs.
You can view the videos by clicking on the links or below, or visiting the Institute’s YouTube channel
The C-CHANGE research project: A Carer’s Experience – How can we improve coordination of care? 1/3
The C-CHANGE project: A Carer’s Experience – Supporting families when the news is difficult 2/3
The C-CHANGE research project: A Carer’s Experience – Bereavement care 3/3
How are patients’ needs supported by C-CHANGE?
Patient and Public Involvement impact on developing study questionnaires
How the C-CHANGE project will respond to patient distress
For further information please contact the C-change team.